Appointments and more appointments.

So we took Dylan up to Primary's for a few appointments this week The first was the Plastic Surgeon again about Dylan's head shape. He said that her Craniosynostosis (when one or more suture has prematurely closed) is with the front suture so she has Trigonocephaly, or a triangle shaped head. Although, it's not as bad as a lot of kids, it's definately there. He said it's up to our Neurosurgeon if they will need to operate because her brain might not need the room. Since we were meeting with the Neuro on Thursday he said he would speak to him before then and let us know. That surgery is pretty involved, it's a 5 hour surgery and they basically remove the bone of her forehead and eyebrow bones and then reshape them and put them back. It's a 5 hour surgery with a 5 day recovery. Bah!

Then we saw Infectious Disease who said that she can come off one antibiotic but she should stay on the other for a week.

Then on to MRI, she went in late and couldn't seem to wake up from sedation. Since they have to go home at some point, they threatened to keep her there all night unless she woke up by 7:30. Then... on the nose BING! Her big eyes opened and she was chatting it up with everyone. It's like she knew because 5 minutes made the difference between night and day.

On Thursday we saw the General Surgeon first and he took a look at the MRI and said the cyst was completely deflated which was great! He said there wouldn't be reason for him to operate but if the Neuro goes into her spine anyway they might as well take it out. He tried to get ahold of our Neuro but he was (quite literally) in some one's head. Don't rush the brain surgeon! So we went down to wait for him to get out of surgery. He's going to operate to untether her cord but wants the General Surgeon to be available so we don't have a date yet but we should have one by Monday. I guess it's a three day recovery for that. The nerves that can be affected are her bowel and bladder but the risk is definitely greater to leave the tethering as is.

And, he also said... "Of course her brain will grow!" and said if Dylan were his he would want to fix her little skull which was good enough for us. He just said that we would want to give her brain the best chance and creating room is a big part of that. If we chose not to operate and she did need it, it could affect her vision so that's basically a given. We will have to do this first surgery and then schedule the next on for after she's recovered.

Boo to the factual posts! Maybe something fun will happen and I will get to post again!